Why your steps matter more

Your 10,000 daily steps matter to you because they make you feel great. With STEPtember, they matter even more. Because you’ve stepped up – you’re helping fund life-changing scientific advances for people with cerebral palsy.

 

The money raised through STEPtember will benefit research projects that support CPARF’s four main research areas:


Prevention

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CHRONIC PAIN TREATMENT ALTERNATIVES

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Technology/ TTS

 

Regenerative Medicine

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Nearly 60% of the most effective cerebral palsy treatments have been discovered in the last decade, thanks to the collective efforts of the global CP research. Recent breakthroughs are already being converted into new CP preventions. Even with all this advancement, 1 in 320 American children are still born with CP. But there is hope.

Australia has accelerated their CP research and lessened this ratio to 1 in 700 children. They’ve been able to do this through medical intervention, including identifying high-risk pregnancies, giving magnesium sulfate given to pregnant moms, and by cooling babies’ body temperatures after birth.

CPARF is working to roll out these technologies and techniques to American hospitals in the U.S. to significantly lower the incidence of CP.


Depending on the type of CP a person has, it can impede their ability to walk, speak, sleep, and eat. And because of CP’s physical impact, around 75% of adults and children with CP experience daily, often debilitating chronic pain. Chronic pain has a ripple effect on quality of life and can make it more difficult for people with CP to interact with their friends and family, make education harder to pursue, and keep employment out of reach.

Conventional chronic pain treatments have overwhelming negative effects on people, treating pain while worsening quality of life. We’re working to change that by partnering with foremost experts in pain and science worldwide to devise the most effective, comprehensive, evidence-based guidance for CP chronic pain diagnosis and treatment.

CPARF is currently funding an extensive study examining chronic pain’s underlying causes, as well as potential non-opioid, non-addictive treatments to improve the lives of millions of people with CP.


Communication is the keystone to interpersonal relationships, education, and employment. And that means 25% people with CP — those who can’t speak — are cut off from pursuing so many opportunities to connect.

Current computerized augmentative and alternative communication devices can be cumbersome and time-consuming. Because CP can make fine-motor movements like grasping or extending a finger difficult or impossible, many people with CP can’t use touch-based devices.

We’re working to revolutionize communication for them. CPARF is partnering with neurologists, neuroscientists, and engineers to develop a Thought-To-Speech (TTS) system to generate speech directly from intentional thoughts, hoping to make saying what you think a reality for everyone — whether they have CP, or other neurological conditions that affect speech, like ALS, Parkinson’s disease, and strokes.

 

CP is a physical disability that’s caused by brain damage during pregnancy, birth, or shortly after birth — and this is the most critical phase for neurological growth in human development.

For decades, science has cast brain tissue and cell damage as permanent with lifelong implications.

But that’s changed over the last few years. Regenerative medicine has produced major breakthroughs, and stem cell scientists now believe that regenerative treatments for brain repair can eventually cure CP.

CPARF’s researchers are discovering ways ethically sourced skin, placenta, umbilical cord, and bone marrow cells can help repair damaged brain tissue.

With recent advances in medical technology, cell sourcing, bioengineering, and processing procedures, stem cell research has reached an inflection point — it’s poised to revolutionize medicine and prevent or reverse neurological conditions and diseases.